Sparud-Lundin C, Josefsson U, Berg M, Hellström A-L, Koinberg I, Jenholt Nolbris M, Ranerup A och Skärsäter I. Use of participatory design in the development of person-centred web-based support for persons with long-term illness. European Journal for Person Centered Healthcare, vol 1(2), December 2013.

Josefsson U, Berg M, Hellström A-L, Koinberg I, Jenholt Nolbris M, Ranerup A, Sparud-Lundin C. & Skärsäter I. Person-centred web-based support – development through a Swedish multicase study. BMC Medical Informatics and Decision Making, 13, 13:119. DOI: 10.1186/1472-6947-13-119. URL:

Skärsäter I, Berg M, Hellström AL, Koinberg I, Jenholt Nolbris M, Ranerup A, Sparud-Lundin C, Josefsson U (2013). Web-based Support in Long-term Illness – a Person-centred Care Approach. Medicine 2.0, 6th World Congress on Social Media, Mobile Apps, Internet/Web 2.0. London, GB; September 23-24, 2013, p.43.


Ingela Skärsäter; Marie Berg; Anna-Lena Hellström; Ingalill Koinberg; Margaretha Nolbris; Ulrika Josefsson; Agneta Ranerup; Carina Sparud Lundin (2012). Web-based learning and support – a person-centred care approach in long-term illness. Poster presenterad vid Scandinavian Conference on Health Informatics, Linköping den 2-3 oktober 2012.


Josefsson, U. (2011). Patienters användning av Internet – Landskap och vägar för ”coping online”. Lund, Studentlitteratur.

Josefsson, U. (2011). Internet – ett mångfacetterat verktyg för många kroniskt sjuka. Pharma Industry. Årgång 14, nr 6, sid 34-38.


Josefsson, U. (2009). Supporting the Development of Personalized E-Health: An Insight into the E-Patient Context. In K. Khoumbati, Y. K. Dwivedi, A Srivastava, and B. Lal (Eds.) : Handbook of Research on Advances in Health Informatics and Electronic Healthcare Applications: Global Adoption and Impact of Information Communication Technologies, pp 353-367, Hershey, Medical Information Science Reference.


Josefsson, U. (2008). Towards patient centred care – information technology supporting patient narratives. Poster presented at the 21st International Congress of the European Federation for Medical Informatics, MIE 2008 (held jointly with the national VITALIS conference), 25-28 May, Göteborg, Sweden. Publicerad i European Notes in Medical Informatics, Vol 4 ( No 1 ).


Josefsson, U. (2007). Coping Online. Patients’ use of the Internet. Doktorsavhandling, Gothenburg Studies in Informatics, Report 37, Göteborgs universitet.

Josefsson, U. (2007). Patient narratives on the Internet – a literature review. Paper presented at the 2nd Nordic Workshop on Health Management and Organization, 6-7 decemeber, Göteborg.


Josefsson, U. (2006). Patients’ Online Information Seeking Behavior. In M. Murero and R. E. Rice (Eds.) The Internet and Healthcare: Theory, Research and Practice, pp 127-147, Mahwah, NJ: Lawrence Erlbaum Associates.

Josefsson, U. (2006). Exploring E-patients’ Heterogeneity: Towards Personalized E-Health Applications, In Proceedings of the 14th European Conference on Information Systems (ECIS 14), 12-14 June, 2006, Göteborg.


Josefsson, U. (2005). Coping with Illness Online: The Case of Patients’ Online Communities, The Information Society, Vol 21, Nr 2, sid 143-153.


Josefsson, U. (2004). Patients creating self-help on the Internet – lessons for future design of Internet based healthcare resources. In Proceedings of the 37th Hawaii International Conference on System Sciences (HICSS 37), 5-8 Januari 2004.


Josefsson, U. & Ranerup, A. (2003). Consumerism revisited: the emergent roles of new electronic intermediaries between citizens and the public sector. Information Polity 8(3/4):167-180.

Josefsson, U. (2003). Patients’ Online Communities – Experiences of emergent Swedish self-help on the Internet. In M. Huysman, E. Wenger & V. Wulff (eds.) Communities and Technologies, Proceedings of the First International Conference on Communities and Technologies, 19-21 September 2003, Amsterdam, Holland.


Josefsson, U. (2002). Internet as a Healthcare resource. Patients’ requirements for online community building. In Proceedings of the 25th Information Systems Research Seminar in Scandinavia proceedings ( IRIS’25), 10-13 augusti 2002, Bautahøj, Danmark

Josefsson, U. (2002). Internet as an intermediary in the transformation of the patient role”. Internet Research 3.0 Net/Work/Theory. 13-16 oktober 2002, Maastricht, Holland.


Nilsson, A., Josefsson, U. & Ranerup, A. (2001). Improvisational Change Management in the Public Sector. In Proceedings of the 34th Hawaii International Conference on System Sciences (HICSS 34), 3-6 januari, Maui, Hawaii, USA.


Josefsson, U. & Hanseth, O. (2000). Patient’s use of the Internet for Medical Information – Opportunities and Challenges. In Proceedings of the 23rd Information Systems Research Seminar in Scandinavia (IRIS’23), 12-15 augusti 2000, Uddevalla, Sverige.

Josefsson, U., Nilsson, A. & Ranerup, A. (2000). Att introducera grupprogramvara i kommuner: Erfarenheter, problem och möjligheter. Slutrapport publicerad i skriftserien: Studies in the Use of Information Technology, Informatics, Göteborg (Report 20).

Josefsson, U., Nilsson, A. & Ranerup, A. (2000). Collaboration in Public Sector: Enabling Conditions for Groupware Introduction. In Proceedings of the 23rd Information Systems Research Seminar in Scandinavia (IRIS’23), 12-15 augusti 2000, Uddevalla, Sverige.


Josefsson, U. (1999). Aspects of Awareness in Constructing a Common Information space. In Proceedings of the 22nd Information Systems Research Seminar in Scandinavia (IRIS’22), 7-10 augusti 1999, Keuruu, Finland

Josefsson, U. (1999). Structures in Interaction and Groupware Use. Position paper for the workshop ”Evolving Use of Groupware”, ECSCW’99, 12-16 september 1999, Köpenhamn, Denmark.

Josefsson, U. & Nilsson, A. (1999). The Progress of Groupware Use in Local Government. In Proceedings of the 6th European Conference on Evaluation of Information Technology ECEIT’99, 4-5 november 1999, London, UK.

Josefsson, U. & Nilsson, A. (1999). Utvärdering av LIS – Delrapport till ADB-kontoret. Presenterad vid internseminarium på ADB-kontoret i Göteborg den 9 December 1999.


Josefsson, U. (1998). Heterogeneous Networks and Common Needs – Radiology departments in the process of forming a computer supported common information space. In Proceedings of EuroPACS ’98, 1-3 oktober 1998, Barcelona, Spanien.